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Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses 期刊论文

编号：

88bd26a5-3f2a-4d1c-b3ac-3cb5fef833eb
作者：

Lin, Cen(林岑)#^[1,2]Cohen, Emma^[3];Livingston, Patricia M.^[2];Botti, Mari^[2,4,5];
语种：

英文
期刊：

JOURNAL OF ADVANCED NURSING ISSN：0309-2402 2019 年 75 卷 2 期 (412 - 422) ; FEB
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关键词：

cancer decision-making doctors information exchange nurses patient engagement patient involvement patient participation qualitative approaches symptom management
摘要：

AimTo explore people with cancer, doctors', and nurses' understanding of and attitudes toward, patient participation in symptom management.
BackgroundIn health service policies worldwide, patients are recognized as the important members of the treatment care team. The concept of patient participation can be understood from a variety of perspectives, reflecting the limited conceptual clarity and poor congruence between patients' and clinicians' understanding.
DesignA qualitative study conducted using individual interviews.
MethodsForty one people with cancer, five doctors, and seven nurses were recruited from two oncological medical units of a cancer specialized hospital in Shanghai, China between November 2013 - March 2014. Individual interviews were semi-structured. Data were analysed through framework analysis.
ResultsPatient participation was perceived as a mutual interaction requiring contribution from both patients and clinicians. Three main themes were uncovered: (a) information exchange is the key to patient participation; (b) negotiated decision-making can be achieved in various ways; and (c) patients' self-management can be a form of patient participation. Patient participation was recognized by both patients and clinicians as an important component of cancer care, however concerns relating to patients' limited knowledge and their ability to negotiate treatment decisions existed among most of the patients, doctors, and nurses.
ConclusionThis study identified the wide range of activities where patient participation can occur in the context of cancer care. Positive recognition of patients' roles in treatment and care should be advocated among both patients and clinicians to facilitate patients' participation in their own care and enhance clinicians' skills in involving patients.
推荐引用方式
GB/T 7714：

Lin Cen,Cohen Emma,Livingston Patricia M., et al. Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses [J].JOURNAL OF ADVANCED NURSING,2019,75(2):412-422.
APA：

Lin Cen,Cohen Emma,Livingston Patricia M.,Botti Mari.(2019).Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses .JOURNAL OF ADVANCED NURSING,75(2):412-422.
MLA：

Lin Cen, et al. "Perceptions of patient participation in symptom management: A qualitative study with cancer patients, doctors, and nurses" .JOURNAL OF ADVANCED NURSING 75,2(2019):412-422.

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