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Navigating the Journey of Living with Young-Onset Dementia: Experiences of Spousal Caregivers 期刊论文

编号：

6D0775A0F09D670983B4E87F31465D9C
作者：

Cui, Xiaoyan^[1];Wang, Junqiao(王君俏)^[1]Tang, Xueting^[1];Ding, Ding(丁玎)^[2,3,4]Wu, Bei^[5];Zhao, Qianhua(赵倩华)^[2,3,4]Wang, Jing^[6];
语种：

英文
期刊：

JOURNAL OF ALZHEIMERS DISEASE ISSN：1387-2877 2024 年 101 卷 1 期 (197 - 209)
收录：
关键词：

Alzheimer''s disease caregiving experiences challenges spousal caregiver young-onset dementia
摘要：

Background: Young-onset dementia (YOD) refers to dementia occurring before the age of 65, with Alzheimer''s disease being the most common form, posing distinct challenges for spousal caregivers. Objective: This study aims to investigate the unique experiences of spousal caregivers of persons with YOD in China, where dementia-specific community care services and primary healthcare professionals are relatively lacking, in order to inform the tailored support services development. Methods: This qualitative-design study utilized semi-structured interviews with 11 spousal caregivers of persons with YOD dwelling in the community. Traditional content analysis was employed to analyze the interview data. Results: Limited dementia-specific healthcare professionals and low public awareness made diagnosing and accepting YOD a prolonged and challenging journey. Spousal caregivers faced skepticism when seeking diagnosis, exacerbating their burden and emotional stress. Disparities in healthcare professionals and insufficient collaboration between institutions worsened the situation. YOD significantly impacted family dynamics and led to changes in emotional communication within the family. The stigma surrounding YOD raised concerns among spousal caregivers about their children''s future in marriage and career, Conclusions: In settings where dementia-specific community care services and primary healthcare professionals are limited and unevenly distributed, integrating support services at both the primary and community levels is crucial for families dealing with YOD in the community. Additionally, raising public awareness about YOD can foster a more understanding and supportive environment, addressing challenges related to stigma faced by affected families, contributing to increased investment in supporting resources, and encouraging individuals to seek help early on.
推荐引用方式
GB/T 7714：

Cui Xiaoyan,Wang Junqiao,Tang Xueting, et al. Navigating the Journey of Living with Young-Onset Dementia: Experiences of Spousal Caregivers [J].JOURNAL OF ALZHEIMERS DISEASE,2024,101(1):197-209.
APA：

Cui Xiaoyan,Wang Junqiao,Tang Xueting,Ding Ding,&Wang Jing.(2024).Navigating the Journey of Living with Young-Onset Dementia: Experiences of Spousal Caregivers .JOURNAL OF ALZHEIMERS DISEASE,101(1):197-209.
MLA：

Cui Xiaoyan, et al. "Navigating the Journey of Living with Young-Onset Dementia: Experiences of Spousal Caregivers" .JOURNAL OF ALZHEIMERS DISEASE 101,1(2024):197-209.
入库时间：

2025/2/19 14:37:50
更新时间：

2025/2/21 12:42:40

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